and oddly nervous.
If you know me (and listen to my constant complaints) or if you've read my blog for any length of time, you'll be very familiar with my ongoing ear/neck issues. The short synopsis? Five years of ongoing ear pain and pressure, somehow linked to a feeling of fullness or sometimes tenderness in the right side of my neck/throat.
I've been on allergy meds (with no known allergies). I've had a temporary ear tube placed. Yeah, the one that should have lasted six months and is still there THREE YEARS later? I've been given pain meds. I've been given decongestants. I've been denied (via insurance) a new CT scan - the last one was over five years ago. I've been kicked out of one practice. I've been evaluated by the Department Chair of Otolaryngology at UC Davis.
I'm fairly certain, that somewhere on my medical chart is some notation that equals the diagnosis of "crazy" or "she's making this sh*t up" on my chart. Because when examined? Everything appears normal. No one can palpate anything abnormal in my neck - although I can feel it. No one can see anything abnormal in my ear. It looks hunky-dory. Except for my ongoing pain.
When I went to UC Davis last month, the doctor there threw out two ideas . . . (1) that I have acid-reflux or (2) that all this pain and pressure is caused by scar tissue that may or may not be laying across my carotid artery from a benign tumor removal that I had removed from the same region in 1996. I agreed to go on meds for acid reflux - although I whole-heartedly believe that is a bullsh*t diagnosis. I was told that if it was scar tissue, there was nothing we could do and I would have to live with it. And the doctor was supposed to see me in two months if my symptoms persisted.
Then, about two weeks ago, my symptoms got worse. My neck felt swollen, all of the time, and I noticed that some of my pills were getting stuck in my throat, or that I had a hard time swallowing certain foods. My head was/is killing me almost constantly.
I got scared. I called two of the doctors last week to describe my worsening symptoms. I didn't hear anything until Monday morning. One doctor basically washed his hands of me, saying he had no answers for me. The second doctor ordered two urgent MRIs. One of my brain. One of my neck.
Apparently, in an insurance/reimbursement driven world? Urgent doesn't mean what you and I might assume it to. My primary insurance has sent the order to "medical review" to determine if it is medically sufficient or not to warrant the tests.
On top of all this, I started gagging and retching and subsequently throwing up the last two evenings. It's like something is stuck in my throat or is pushing on it and if I swallow wrong or think about it too long? It triggers my gag reflex and I go running for the nearest toilet to hug.
All that (TMI) being said, here I sit. I am supposed to be at our statewide annual conference next week. Today, I found someone to cover my spot there. I have been so nervous and anxious about being committed to being there (and non-refundable deposits) and potentially having UCD call to schedule the scans and then being conflicted about where to be.
To be completely honest? I have been so filled and overcome with anxiety that I cannot imagine driving away from my family to go.
Long story short? I am 99% certain that this is nothing big. I am scared, for sure. I am scared of the unknown. I am scared that the scan will show something. Something that could have been dealt with easier a year or two or five back.
I am almost, oddly enough, scared it will show nothing. At which point I am probably a prime candidate for a mental health stay at a finer white-jacket establishment. But I swear on all that is holy, I have a significant amount of discomfort in my right neck and ear. I have nothing to gain by faking it. Or crying wolf over something mildly annoying. So I really, truly am certain that there is something going on.
Now if we can just get the insurance and/or medical community to fight just a little bit for me. Please?
If you're the praying kind? Please pray that I will have peace while we wait. Because I can be an over-the-top-worst-case-scenario girl when it comes to stuff like this. And I am trying to remain surrounded by faith and hope and the assurance that 99.9% of this stuff turns out to be nothing. But if I even question, for one minute, that this might something serious? I can lose all perspective instantaneously.
Thanks for listening to my tired rambling. John is at work and I am certain that he is tired of my incoherent mumbling about it all anyway. So, Internet? That leaves you. Thanks for being here. Day and night.